ADVOCACY

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POLICY ACHIEVEMENTS

Sickle Cell Association of Houston takes pride in their most recent advocacy efforts not only to better the lives of those in the Greater Houston Metropolitan area, but for Texans living with sickle cell disease. It is with great honor, that our organization served as lead consulting strategist working hands on with our State Legislators yielding the passage of FOUR sickle cell related bills during the 86th Texas Legislative Session. The organization is no stranger to advocacy as they started making the change within their local city as they understood all too well, necessary change was critical and needed to happen immediately.  Please check out a few of their additional efforts: 
2019- Worked hand in hand with Senator Borris Miles and Representative Jarvis Johnson along with many others,  leading to the passage of four sickle cell related bills. FIRST TO EVER BE DONE IN TEXAS! one of which was a bipartisan effort
2018- Rcvs State recognition for sickle cell disease advocacy
2017- Mayoral Proclamation Advocacy in Houston, Texas
2017 - Receives Congressional recognition for Service in areas of sickle cell disease
2016- Our organization is responsible for the establishment of the Houston Sickle Cell Collaborative via Houston Health Department
2016- Launches Ambassador Program
2015-Est.  Houston Sickle Cell Awareness Day
2015- City of Houston officially recognizes Sickle Cell Awareness Month
2014- Est. to raise awareness for sickle cell disease

 

April 2019-Sickle Cell Association of Houston leads team at hearing to testify before the Texas Public Health Committee

May 2019- President, Tonya Prince advocates for access to treatment options before the Texas Medicaid Drug Utilization Review Board. 

AWARDS

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RECOGNITION

2019- National HRSA grant Sub-Awardee for the Sickle Cell Disease Association of America Peer to Peer Mentoring Program
2019-National Institutes of Health Award of Service
2019- Sickle Cell Advocate of the Year Awardee
2018 - Phyllis Z. Thomas Award of Merit
2017 - Hurricane Harvey Hero for sickle cell families
2016- Ethel Hedgeman Lyle Award for work in Health Disparities in sickle cell disease 

President & CEO pictured with Honorable Congresswoman Sheila Jackson Lee who kindly acknowledges our efforts and thanked us for RE-IGNITING sickle cell disease in Houston.

State of Texas Representative Jarvis Johnson announces legislative filings of four sickle cell related bills in an effort to combat the challenges around access, treatment, and awareness. 

YIELDING IMPACT

Our programming has been acclaimed as second to none yielding return, self empowerment, and and overall positive impact within the sickle cell disease community.  We thrive in meeting the needs of the community, our clinical counter parts, and working with other community partners as we know and understand that we CANNOT fight this battle alone. 
2019- Creators of a National Men Living Well With Sickle Cell Panel Discussion
2019- Creators of FEAR: The truth behind clinical trials and studies
2019- Trained & Mentored Individual Ambassadors for Sickle Cell across the country
2019- Est Sickle Cell Alliance Network of Texas (SCAN Texas) - A Collaborative Movement
2017- Est Sickle Cell Houston Walk for the city to celebrate sickle cell awareness in Sickle Cell Awareness Month
2016- Texas Southern University becomes sickle cell ambassador site 
2016- Est and named the Houston Sickle Cell Collaborative under directive of the Houston Health Department
2015- Est  integrative CBO sickle cell model while consulting clinical counterparts 

Sickle Cell Association of Houston's programmatic effort to raise the level of consciousness associated with men living with and well with sickle cell disease.

Sickle Cell Association of Houston appears with supporter and sickle cell trait carrier Debra Duncan of KHOU-11 News discussing sickle cell disease and the impact it has on Houston.

GRASSROOTS COMMUNITY ENGAGEMENT

We believe in doing things one way and one way only; and that is to keep the community first!  

Integrative and Holistic Annual Sickle Cell Symposiums established in 2015, and to date, this programming and format has been duplicated across the city of Houston by other community based organizations and institutions alike. 

You can't connect if you're not committed, and that we are!